The engaged patient is ‘the blockbuster drug of the century’ (L. Kish, HL7 Standards, 2012).
A reorganisation of healthcare is taking place, with individuals repositioned as partners in their health journey. Patients are being encouraged to monitor their condition; to oversee how their data are being used; to interact directly with their medical record; to be more engaged and share responsibility for the decisions that will shape their outcomes. And technology is being developed apace to facilitate this role. Alongside this trend, the focus on precision medicine is accelerating, to enable personalised solutions to complex health challenges; relying on huge volumes of data to better understand the subtle distinctions in different diseases that might merit tailored treatment.
How does this shift in the changing expectations of patients, both as data subjects and as healthcare drivers, affect their experiences of healthcare, and what are the risks associated with this progression? What are the unintended consequences of a more democratic and autonomous approach to healthcare, and what might this mean for different communities?
This presentation will explore the progress that has been made in developing the role of the patient, and examine how digital health might influence access to healthcare in the future. It will use precision medicine as a lens through which to examine some of the key issues.
Speaker Biography - Dr. Harriet Teare
Dr. Harriet Teare
Deputy Director, Centre for Health, Law and Emerging Technologies (HeLEX), University of Oxford, ENGLAND
Dr Harriet Teare is a multidisciplinary researcher working at the interface between ethics, governance and biomedical research. She is interested in the role and expectations of patients amidst changing technology, and how the future of healthcare delivery might influence access. Dr Teare employs empirical research methodologies to better understand the experiences of stakeholders to inform her research findings. She is strongly committed to developing methods that allow a diverse range of patients and members of the public to contribute to the research agenda, and help determine areas for future exploration.
Dr Teare has a DPhil in Medicinal and Organic Chemistry from the University of Oxford, and has previously worked as a Policy Advisor at Cancer Research UK. This combined training in lab science and in policy development, along with seven years embedded within the social sciences allows her to draw upon different tools and methods to address timely research questions that will help shape the future of healthcare.
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